Visibly Disabled People Will Present Others With The Most Basic And Easy To Understand Request Like “please

it's funny that people act like disabled people are such a downer and negative and pessimistic for acknowledging their health conditions when we have to be the most optimistic suckers on earth to repeatedly go to drs with the expectation of actually recieving treatment. did i say funny sorry i meant soul destroying

Had an appointment with my neurologist today. Guess who went there with a stupid spark of hope to be taken seriosly this time and ended up crying ugly in the parking lot 🙃🙃

Asking for help while being disabled shouldn't feel so much like handing someone your autonomy and saying "take this away."

giving birth sucks tbh. not only do you and the baby you’re birthing almost die, usually you shit yourself and often you tear your taint. then you have to push an organ out of your body (placenta) and if even a little of that remains in your body, you can hemorrhage to death or develop an infection that essentially rots your body from the inside out. even if you had a relatively “easy birth”, you bleed for weeks on end. even after that stops, your body and brain is changed for the rest of your life, the pregnancy leeched minerals from your bones, that can cause osteoporosis later. minor urinary incontinence is not uncommon, brain scans of people who gave birth show permanent changes in their brain, you’re never quite the same.

I say all of this not to say giving birth is disgusting but it is a harrowing and visceral experience. society downplays how fucking awful it is and makes it out to be a ~magical~ experience but it isn’t a magical transformative experience for everyone. it can be an extremely traumatic experience for someone who wanted to carry a pregnancy to term, much more so for someone who did not want to be pregnant in the first place or someone who knows their baby won’t survive the birth. anyway, abortion is a right. pregnancy and birth aren’t just inconvenient, it’s fucking awful.

yknow what i hate so much? when i technically Could do something that requires more spoons like reading or watching something that im not familiar with, but i know i Should give my brain a rest and read or watch the most mind-numbingly familiar and low spoons things i can find instead

Why why why do medical professionals so insistently push people with chronic pain to “just push through it.”

I’m in a flare right now and my left hip has been hurting no stop for almost three weeks. My physical therapist knows this and I reminded her last time I saw her. So tell me why she proceeded to have me do a bunch of jumping exercises landing with all my weight on my left leg.

I told her the exercises were hurting a lot and she told me to just work through it. Well it’s been half a week and ever since that appointment my hip has hurt even more than before.

Anyway,

You deserve family who try to understand your illness.

You deserve family who try to accommodate your illness.

You deserve family who respect your decisions regarding your illness.

You deserve family who nicely listen to you vent about your illness.

Sometimes it feels like i am already dead. Not part of anyones life anymore. Locked up in my flat. Just a liability for my parents who dont even like me. Like a ghost who is damned to haunt this room, but still has pain and wifi.

like yeah. you're not a bad person just because you're disabled. but also you're not a good person for being abled. you're not a good person for being abled. it doesn't make you better than disabled people. you're not a good person for being abled. internalise it. it's not a reward. you did nothing to deserve this - because health is not something that people "deserve" or don't. it's something they have or not, for any number of reasons

When abled people are involved, the concept of "doing it once in a while for a few seconds doesn't mean you can do it consistently on command like it's nothing" is easily understood.

For example, if someone is able to walk outside without a jacket in the cold to get the mail, everyone would easily understand that they'd still need a jacket if they were outside for a prolonged period of time. If someone is able to hold their breath underwater for a few seconds, everyone would easily understand that they'd still need an oxygen tank in order to stay underwater indefinitely.

But when disabled people are involved, that concept is somehow forgotten. You can stand for a few seconds? You must not actually need that wheelchair. You can socialize once in a long while if the conditions are exactly right? You must not actually struggle to socialize and any struggle you think you have is just fear and negativity. You can be physically active for an hour on a good day? You must not actually be too disabled to work. You have a lot of knowledge on a topic because it's a special interest of yours? You must be "smart" and any bad grades you get are because you're lazy.