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Genuine question for the higher support needs Autistic community and ACTUAL kind genuine care takers of them:

"Is there any channels on YouTube which are not creepy or exploitative that feature higher support needs Autistics?"

I started down a rabbit hole of watching some videos on YouTube of higher support needs Autistics people, and their carers because I was genuinely curious and wanted to know more. I have many friends who are lower or medium support needs, so I understand roughly what their day to day is like. But not for those on the other end of the spectrum.

However, unfortunately (but not really surprisingly because of how most youtube family channels are), what I get from the impression of most of the channels that I've seen is that it's just a bunch of fucking creepy ass grown adults exploiting their children for money.

I will not name these channels outright because I don't want to promote them in anyway on my page. But it's just gross.

Why do we live in a world where I even have to say this but:

It is NOT okay to be filming your underage child while their going to the washroom

It is NOT okay to let a babysitter be creepy towards a teenager in public while also filming it. He was clearly uncomfortable with it, but the adults chose to ignore his body language just because he is nonverbal

It is NOT okay to post videos of your child having a seizure

And It is NOT okay to post your childs autistic meltdowns all over social media.


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2 years ago

This. This is the post I need to show my family. Thank you for putting this into words.

Explaining autism to an allistic is exhausting.

Because most of the time, in my experience, they don't listen to what I'm telling them that it's a disability and that we force our square shaped selves into the circular world everyday and that slowly erodes the edges of who we are.

They're looking for hidden meanings in order to get Autistics to behave more neurotypical. They want to see us become circles.

I explained why we don't use functioning labels any more. And they will say "yes, but you do function more than some." As if it's an "Ah ha! Caught you!" moment.

I was even told today that I obviously find this all easy. Because I hold it together at work.

And I just get so tired trying to explain that I'm not "Aspie". I'm not "high functioning". I'm not "on the spectrum". I'm not "mostly neurotypical".

We're Autistic, goddamnit.


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1 year ago

I'm here with you on this. It's such a scary thing to have to look them in the eyes and see a different glance staring back. It's especially hard to have to rationalize everything that happened in your head, just enough so to make sure your friend has some sort of clue what you're talking about when you explain the situation later on. Cause they're gonna ask. And you'll have to answer. And it's so nerve-wracking. Ugh

Nobody talks about how hard it is to face people again after you've had an episode in front of them

Once they've seen you do full-force into self-destruct, they always look at you with a sense of wariness and like you're not the person they thought you were

The shame makes me want to rip my skin off


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1 year ago

Autism is not an option. It chooses those who are worthy, end of story.


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1 month ago

How fitting that the next poll is on closing night of the Wyndham's run of Stage/Fright, it's almost as if I predicted it! (I didn't, but pretend I did so I seem really smart.)

This was such a close call the whole time, I can't believe it. In Poll 4 for the Reece characters, we are saying ta-ta to Jim, Maureen Sowerbutts, Gareth, and Damon. The (very late) winner is Brian! With Drew coming a close second! Both of which move onto the next heat of polls.

The next poll has another few very strong contenders, with Greg, Clive, Reece (from Dead Line), Neville Griffin, DI Barnabus Bull, and Gerry all fighting to come first and second.

How Fitting That The Next Poll Is On Closing Night Of The Wyndham's Run Of Stage/Fright, It's Almost

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1 week ago

Recently I got the results of my assessment, and I've been diagnosed with autism, I don't know much further than that, because my social worker is going to tell me more later.

I feel so incredibly relieved and happy, because I finally have an official reason for why I am the way I am

Recently I Got The Results Of My Assessment, And I've Been Diagnosed With Autism, I Don't Know Much Further

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1 week ago
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ā•­āœ®Maks ⋆ 17 ⋆ ASD ⋆ Fudanshi & Yumedanshi ⋆ he/him/his(amab) ⋆ aroace ⋆ infp ā•°āœ® Multifandom fanartist

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This is my main blog where I post photos and blog >.< @HarrisonYaoi my beatles side blog

my tags #Makz Artz #Makz Blurtz- textposts #Makz Picz- pictures I've taken

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3 years ago

Autism is just like, one day you watch something and your brain is just like "yup, I'm going to base my life around this for the foreseeable future"


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6 months ago

I consume american media or media in english pretty much all the time (tiktok has a lot more different content in english than in any other language)

And I kinda wish I had an american friend because I just know a lot about usa because of tiktok

It wasn't intentional, it's not like I think usa is that great and I wouldn't want to live there (especially now that trump won) but I just have too many jokes and themes that I can't discuss with people around me because they don't know english that well or aren't in the same media-bubble as me

So this is my official request for a friend

I love fantasy and tv shows, I love isekai, I am very left leaning although I wouldn't call myself an activist. I think I have adhd and asd. I like different teas and herbs

Edit: i am 24f, I forgot to mention that. And I want to discuss politics.

So if you maybe would like to have a friend from another country pls leave a comment


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4 days ago

Is this a 'tism thing, or am I just overacting?

Hello!!! I just got back from taking a shower and also having a full blown meltdown because of said shower. For some context before we get started, my showers are typically scorching hot. A few more details include:

cold water drains my spoons in a way it has absolutely to right to.

I have curly hair (important for later)

I had attempted to take a shower already today.

I went to a baseball awards ceremony for my cousin, three resell stores, and gone swimming at a family member's house.

I've been out of spoons for the past several weeks. I cannot remember the last time I woke up and felt like I had enough to get through the day.

Okay, back to the present. I get home from swimming, scroll on Tumblr for a bit, then decide I'll try taking a shower again. I'd tried already this morning and no matter what I did I could not get the water to heat up, the nozzle was being weird, and I was low on time. I threw my hair into a brain, deciding it wasn't a battle worth fighting. I went to the ceremony, had some fun shopping with my mom for the first time in a while, and had a great time swimming with my siblings. Overall, it was a great day, but even things that make you happy can take up your spoons (or so my therapist said), and it checked out because I was pretty done with all the excitement of the day. I love Saturdays, but they're me time, and I don't really like having plans when I should be reading dark romance novels and marauder fanfics to scrape up what little energy I can manage. I decide to try out my shower again, hoping that maybe it was just a one time, leave it alone for a bit and it'll be fixed thing.

It defiantly wasn't.

The water was still cold as fuck and the nozzle was doing a weird 360 thing and I just wasn't having it. Still, I needed to shower. So I stuck it out for a bit and just dealt with it.

I got my body washed without any big problems (keyword big. I'd been on the verge of tears basically the whole time), but then came washing my hair. First and foremost, I was now shivering my ass off and very much done with cold water. Secondly, I'd been swimming in a salt water pool, which made my hair clump together and dense. Overall, just not an easy task to wash it. By this point, I was sobbing, clutching a towel clutched to my chest because my emotional support 3D printed T-rex was on the counter, had soap in my eyes, and didn't want to be doing this anymore, so I finished up as quickly as I could. Obviously, my hair isn't as well washed as I would like, so I'm not too pleased with that, but I have to work on calming down and washing soup out of my eyes.

I manage to calm down, but now, if I wasn't before, I'm definitely freezing my buttocks off. I speed through getting dressed, putting on the warmest clothes I have, and them work on getting products in my nightmare inducing hair.

It doesn't help, because I now have gross, sticky stuff on my hands, and I have REALLY bad sensory issues regarding my hands in particular. Still, I push through it because I'm still working on unmasking when i'm alone and not forcing myself to do what I know is too much for me. I then get more frustrated because my hair is too wet for it to defuse and I have to dry it again, with gross stickiness still on my hands, and whoops, I'm crying again because I stepped in the tiniest fucking puddle, and of course I'm at that point because why wouldn't I be?

Anyway, am I overreacting?


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5 years ago

It's school time. My endorphins have swam off, my melatonin has become too mellow for its own good, and my dopamine is smoking dope in the corner.

- Me 2020


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