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en.wikipedia.org

Spoon theory - Wikipedia

What is spoon theory and where did it come from?

According to Wikipedia, 'Spoon theory is a metaphor describing the amount of physical or mental energy that a person has available for daily activities and tasks, and how it can become limited. '

Looking at some notable queer disabled people in history

Spoonful

Queer Disabled People in History — Spoonful

TW: discussions of hate crimes, suicide, mental illness, violence Still experiencing technical issues, so alt text for screen readers ca

Are you heading for a burnout without even realizing it? For neurodivergent folks, the warning signs of burnout may look different and be harder to recongize. 

Neurodivergent or not, we all need to understand our limits and boundaries. When you’re neurodivergent, you may not know you pushed yourself too far - until it’s too late!

Need help with some of the terms in this post?

😎 “Masking” or “Camouflaging": a coping strategy that many neurodivergent people use to suppress aspects of themselves to appear neurotypical. It’s important to note that social masking is a tool many neurospicy folks use to keep themselves safe, and usually starts in childhood. 🥄 “Spoons” refers to Spoon Theory, which is a metaphor describing the amount of physical or mental energy that a person has for daily activities and tasks. It is a helpful tool for disabled and neurodivergent folks to describe their energy. 👋 “Stim” short for "self-stimulation" is a term used to describe repetitive behaviors or movements that people may engage in to help cope with emotions. It may include rocking, flapping hands or twirling. 

If any of this resonates with you, try letting the “mask” slip a little! 

pbs.org

The Iconic Civil Rights Protest You Don't Know | American Experience | PBS

Meet the protesters who crawled their way into history—and changed how all Americans live.

Imagine climbing up 83 steps. Perhaps that doesn’t seem like such a big deal—but that’s likely because you’d be walking. What would you do, though, if you couldn’t?  That was the premise behind the Capitol Crawl, a now-iconic protest to demand the passage of the Americans with Disabilities Act. The ADA was a landmark civil rights bill aimed at providing basic amenities and protections to some 40 million mentally and physically disabled citizens. Today we take many of the ADA’s changes to society—curb cuts in sidewalks and closed captioning on entertainment, to name just two examples—for granted. But the act’s passage, in 1990, was anything but guaranteed. By spring of that year, the ADA had been trapped in legislative limbo for months. Despite the strong support of then-President George H.W. Bush, the act was languishing in Congress, caught in the deliberations of House subcommittees. Many U.S. Representatives balked at the expense and complication posed by the ADA’s requirements. Enter ADAPT—American Disabled for Accessible Public Transit—a grassroots disability rights organization that had been staging protests across the country even before its official founding in 1983. On March 12, 1990, ADAPT led a procession of more than 500 marchers, including other disability activists and lobbyists, from the White House to the west side of the U.S. Capitol. There, in the kind of guerrilla civic action for which the organization had become known, scores of marchers dropped to the ground and began the long journey up the hard marble stairs leading to the “People’s House.” They climbed backwards or on their hands and knees, step-by-painstaking-step. “As I’m seeing the people around me,” recalled Anita Cameron, one of the ADAPT activists who made her way up that day, “I'm like, ‘whoa, we are doing it. We are really doing it. We’re, like, crawling into history.’” Rolled up in their pockets, protestors carried copies of the Declaration of Independence. Once they finally summitted the stairs, ADAPT reps delivered those scrolls to members of Congress as a reminder of the ADA’s importance. And while media coverage of the event wasn’t extensive, but the publicity that was garnered by the Crawl was impactful. “The pictures were striking,” said The New York Times several days later, “just as they were intended to be: Children paralyzed from the waist down crawling up the steps of the Capitol.” Six months later, following the bill’s now-remarkably swift passage through the House, President George H. W. Bush signed the ADA into law. “We did it to show that we disabled people, as second class citizens, needed change. And the vehicle for how it was going to change was the ADA,” Cameron told American Experience, reflecting on the Capitol Crawl’s significance. “But I think a lot of people forget that the ADA was the floor. It was not the ceiling. So it was the beginning of rights for us, but it was not the end.”

I fucking hate that the general response to RFK Jr's eugenist take on autistic people is "autistic people do pay taxes, autistic people do work, autistic people do date!"

Some autistic people don't and that shouldn't make them less worthy of life. Some autistic people do need constant help and support and that shouldn't make them less worthy of life.

Once again we're falling in the right wing trap of :

They make a hateful, fascist statement

Instead of focusing on the fact that it is hateful and fascist we try to show them that they are factually wrong

We throw our own allies and the most vulnerable of us under the bus in the process

We legitimise an only slightly less hateful, fascist view as we go

They have completed their goal of making us accept the still hateful, fascist second version, hurrah. What a victory.

Right now what we're getting to with that is that autistic people who can work and pay taxes are okay, and the others aren't. Fuck this shit.

Same thing happens with the people who are being deported ("they have a visa!", "they didn't even have a criminal record!" -> even if they didn't have a visa, even if they did have a criminal record, deporting them and detaining them in what's essentially a concentration camp wouldn't be okay, you absolute tools of fascism.)

Reshaping Reality

A History Lesson: Disabled Activists and our Right to Exist in Public

For a History Lesson and reminder of the role Disabled people have played in activism, I singled out a few instances, but there’s hundreds o

"For a History Lesson and reminder of the role Disabled people have played in activism, I singled out a few instances, but there’s hundreds of thousands throughout America’s history. Many of the privileges and rights people have had are due partly to the fight of our disabled ancestors."

My article details the oppression we've faced for centuries (how it impacts disabled folks of different races, genders, orientations, citizenship status), it talks about the strikes organized by the Disabled Miners and Widows in conjunction with other union groups (and the solidarity this created across union lines). I also talk about the origin of the concept of Accessibility.

As a reminder, Disability is the one marginalized group you can join at any time. Everyone can become disabled, and that is not something to fear -- society taught us to fear it, but I am here to remind you that disabled people are worthy of care, dignity, and respect. We matter and fighting with us will help save all of us including non-disabled people as what impacts us will impact you.

I'd recommend reading it all! I pull out this one example since we're having to defend Section 504 yet again. These tactics used for Section 504 was also used to push for the ADA. I believe it is time for solidarity and more sit-ins/occupations of federal offices:

SECTION 504 Sit-ins

In 1972, Congress drafted the Rehabilitation Act, which was driven largely by the needs of Vietnam veterans. However, this act drew the gaze of the civil rights activists largely due to Section 504.

In Section 504, it stated that people with disabilities should not be “be denied the benefits of, or be subjected to discrimination under any program or activity receiving federal financial assistance.”

The bill was first vetoed by Nixon in 1972, however, activists across the country from various disability advocacy groups and many student groups testified before state legislatures and Congress to push for the elimination of architectural, educational, bureaucratic, and other barriers. They argued heavily for elimination of these barriers and for the ability to be considered for jobs.

Despite Nixon vetoing the Rehab Act a second time, it passed in September 1973. Its section 504 gave disabled people legal and cultural frameworks to gain access to the parts of society they’d been denied prior.

However, these laws were not enforced. Through the lawsuit Cherry v. Matthews, activists pushed for enforcement regulations, and in July 1976 a federal judge ordered the Secretary of Health, Education, and Welfare (HEW) to develop regulations.

With the continued federal failure to enforce Section 504, Disability activists staged demonstrations in Washington D.C. and in each of the ten HEW offices across the country. This sit in lasted twenty-five days. Judy Heumann helped lead one of the largest sit-ins of federal offices.

“Oh deep in my heart, I do believe that we shall overcome today,” protesters sang at the sit-ins.

These protests gathered allies from local and national labor unions who joined protestors and wrote statements of support.

When phone lines were cut, the Butterfly Brigade, who were a group of gay men who patrolled streets to stop antigay violence, smuggled in walkie talkies.

The Black Panthers provided one hot meal a day, and Chicano activists brought food regularly.

Chuck Jackson, who was part of the Black Panthers, joined the protest by provided attendant-care services for Disabled Black Panthers in the sit-ins and other protest members.

Increasing media attention brought the focus of the nation. Images and video of disabled people crawling up the steps to reach the sit-in were heavily publicized.

Four weeks into the occupation, HEW secretary Joseph Califano signed the enforcement regulations, thus ensuring all programs receiving federal funding could not discrimination based on disability.

READ THE FULL POST HERE.

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

This is a fascinating article about how the Medici, who had a hereditary mobility condition, adapted the architecture of Florence for disability access:

Florence’s Medici had a family curse: an agonizing hereditary medical condition causing torturous joint pain and severe mobility restrictions, so it was agony to stand, walk, or even hold a pen. Yes, Renaissance Florence, cradle of the Renaissance, was run by disabled people from a sickbed. The famous Cosimo had to have servants carry him through his own home, and used to shout every time they neared doorway. When asked, “Why do you shout before we go through a doorway?” He answered “Because if I shout after you slam my head into the stone lintel it doesn’t help.”

This is a friendly reminder that none disabled people often do benefit from the same accommodations disabled people benefit from.